sappho [she/her]
And for every one set of parents that is willing to believe their kids over the doctors’ dismissal, there are - let’s say - five more sets who have caved under the pressure and are busy gaslighting their children and making them sicker. Five more kids with lifelong medical trauma, chronic illness, and broken trust in the people who are supposed to protect them.
The Forest for sure, assuming that magical deep rest works even on my ME/CFS. Can’t do any of the others without my health anyway
If I wasn’t sick, though, I’d pick the shop. For stress relief sometimes I enjoy making massive wishlists of items I never actually buy, and this is like the upgraded version of that. Just seems like it’d be fun to wander and marvel and gather and choose… Plus it’s the one that is most likely to be helpful to your outside life and other people you care about.
I feel this is the first of many laws like this. I haven’t felt this deeply crushed, hopeless, and afraid for a very long time. It’s hard to keep going when your life is so small and everyone in power is bent on making it even smaller. I don’t know how I will do it, and sometimes I wish I wouldn’t keep trying.
There’s a weird thing that some people with LC have where large blood draws lead to symptom relief for hours/days/weeks. Probably something something microclots or inflammatory something being removed temporarily, or maybe the body’s response to injury…? No one knows, we’re all just speculating. But it happened to me personally after a big blood test and then I was seriously looking into donating blood regularly, or, alternatively, nurturing a crop of medicinal leeches at home.
How much water do you drink in a day? I have a pretty normal size reusable water bottle and it holds more than enough for a workday. You could just fill it at home in the morning instead of needing to use the water fountain that other people are using.
Is this a new symptom for you/do you want practical suggestions for managing panic attacks without medications? I have had frequent panic attacks for many years, and I’ve tried a lot of stuff, so if there’s an aspect that would be helpful for me to info-dump about, let me know. I’m sorry you’re going through this
I am STRESSED about the potential mask ban in North Carolina and I am trying NOT to think about it but it is NOT WORKING
Waking up and feeling exhausted could be caused by sleep disordered breathing (apnea, UARS) or it could be an early sign of ME/CFS, which is a variety of long covid and can present in a delayed fashion from your last infection. Probably it’s something simple like vitamin deficiency or anemia, but these conditions are both mild at first but very bad long term if left unidentified so I thought I’d throw them out there